WHATNEXT’s partner site, Patient Worthy, publishes a twice-monthly podcast that features patients, advocates, doctors and other champions of the rare disease community. If you haven’t given it a listen yet, please follow the link above or subscribe on your favorite podcast app. They have years of fascinating and inspiring chats with rare disease patients for all your binging needs.
In their latest episode, host Colby Rogers sits down with Ronda Thorington, the mother of a child living with mixed connective tissue disease, an autoimmune disorder that presents with a multitude of lifelong symptoms. Ronda is also a licensed professional counselor who specializes in empowering parents of children who are living with a rare or chronic diagnosis, including cancers. While Ronda’s own family experiences are not related to cancer, childhood cancers effect 10,000 – 12,000 families in the U.S. every year. We felt like Ronda’s advice for parents caring for chronically ill children would resonate in the WHATNEXT community.
We’ve embedded the latest episode below, but be sure to check out PatientWorthy.com for the latest in rare disease news, or follow them on any of their socials.
Editor’s Note: Get Involved
Cancer doesn’t discriminate. WHATNEXT and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have a cancer journey to share, reach out here to learn more about how your voice can help spread awareness and inspire individuals from all walks of life.
Last modified: June 7, 2024
